disability

-  THIS PAGE WILL UPDATE REGULARLY 

with NEW LINKS to INFORMATION and SUPPORT - 


When audience members approached slp/MM after shows and, instead of noting her voice, songs, or performance, commented "you have so many emotions," they didn't know how right they were—or how much those words felt like a backhanded slap instead of any kind of compliment. In 2008 or so, slp received a bipolar II diagnosis, officially recorded as cyclothymia (also part of the diagnosis) so that insurance would not deny coverage.

Well, a few years later, some doctor or other used a bipolar code, and after that, slp was denied coverage. While the diagnosis remained privileged information for many years—for fear of many things, including the reaction of students who might distrust the judgment of someone with a bipolar diagnosis, or who may be unhappy with a past grade given—the insurance denial essentially meant that the information didn't have to be privileged any more...so long as slp was comfortable with it being open. That didn't happen for a long time.

The more time passed, the more slp learned about disability issues—physcial/mechanical and mental. A crippling long-term case of tendonitis stopped the music major from playing piano at the age of 19. Years of chronic fatigue around which her adult life and jobs were structured. In 2011, a severe case of depression and the difficulty of maintaining the upbeat energy in performances and personal relationships led slp to quit music entirely.

After many, many months and money spent on holistic psychiatrists, physical therapists, blood tests, supplements, pharmaceuticals, and shamans, slp received still more diagnoses that, in fact, may explain the bipolar II diagnosis (as this diagnosis is essentially a collection of symptoms rather than a clear and consistent mechanical cause-effect). With ongoing treatment, slp now plays the piano with little, and manageable, pain, and can get through many days without falling asleep. Depression, anxiety, fatigue, brain fog, and the occasional hypomanic bent return in uneven and unexpected cycles. 


A long-dawning realization showed slp that, starting from high school mentors to current-day companions, all the closest friends had gone through similar experiences—namely, severe trauma, PTSD, depression, disability challenges, and/or lots of therapy. This community has shown slp the need for advocacy and community support for disabled people/people with disabilities. It has also driven slp to be open with diagnoses.

When slp returned to music in 2018, and decided to take on the moniker MaudLyn Monroe, it was done expressly to lean into those emotions—instead of feeling the pressure to fit into up-tempo tunes like a mechanical monkey, always playing the cymbals cheerfully, Instead, MM is cheerfully emotional—or at least, attempts to be. Up-tempo is on the menu but so are electrified sad bastard songs. For some listeners, this may have little importance—for some musicians, this would be un-noteworthy. For slp/MM, and those with other mental illness and diagnoses, these kinds of decisions are monumental and life-changing.

Now slp/MaudLyn Monroe hopes that music and advocacy can, like it has so many times, help not only the musician but others in the community.


Please see below to learn about and support others with disability issues.

-  THIS PAGE WILL UPDATE REGULARLY 

with NEW LINKS to INFORMATION and SUPPORT -


AUTISM

Hannah Gadsby, on comedy and autism

- IN DEVELOPMENT - 

NEUROATYPICAL

- IN DEVELOPMENT - 

MAD PRIDE & SUPPORT

What is Mad Pride? | Wikiepedia overview (current) | A thoughtfully skeptical Newsweek feature ('09)


The Icarus Project - "a support network and education project by and for people who experience the world in ways that are often diagnosed as mental illness."


Mad in America - blogs, newsroom, and resources to "serve as a catalyst for rethinking psychiatric care in the United States (and abroad)."


EATING DISORDERS

The Real Life RD - "A non-diet dietitian and nurse practitioner helping women find peace with food, accept their natural body size and heal from hormonal issues and period problems."


The Hungry Caterpillar - "Although I write a lot about what exactly being “recovered” means–I see it as a rather dynamic, rather than static, state, although total recovery remains my ultimate goal."